Info & Support

At this point the RP Pathway forks, there are notes about the availability of further Information & Support services for you from RP Fighting Blindness on this page, and then sections for doctors, parents, family and friends, teachers and employers, as well as some general resources.

You should encourage the people close to you and those who you need to understand the impact of RP on your life to read the relevant sections of this pathway using the links to the right of this page or that drop down from the menus at the top.

RP Fighting Blindness

RP Fighting Blindness is the specialist charity and support organisation for people with RP in the UK. The charity offers a range of services which you can take advantage of by visiting their website, emailing or calling their office. These services include:

  • An extensive website with information about RP, RP research, and coping with RP
  • The RP Helpline, via telephone and email
  • The RP Telephone Befrienders Service
  • A network of branches and social groups across the UK
  • An outreach programme
  • Social networking group on Facebook
  • The RPYP (RP Young People) Group
  • Regular events and conferences
  • Quarterly magazine in various accessible format
  • Monthly email bulletins
  • A freely available online or DVD film “Living with RP”
  • Signposting and links to other organisations that can help
  • Links to international organisations and events
  • Opportunities to get involved in fundraising and volunteering

Call: 01280 821334 (office)
Call: 0845 123 2354 (Helpline)
Write: PO Box 350, Buckingham, MK18 1GZ

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